I decided to start a journal talking about my experiences being the mother of a special needs child. My daughter is 19 years old now. When she was 8 months old, I was told that my daughter wouldn’t life to her 1st birthday. I planned her funeral. Needless to say, she proved the doctors wrong.
Life is a little difficult right now. My daughter is suffering from intractable seizures. She has a vagal nerve stimulator and she has had brain surgery yet she still has many, many seizures a day.
The one good thing is that she smiles through it all. She is happy and easy-going. I’m very fortunate that she does not have behavior problems. I don’t want to spend this whole post listing her medical problems. I want this to be a blog that uplifts as well as a place to vent.
Maybe it will touch someone else.
Life is a little difficult right now. My daughter is suffering from intractable seizures. She has a vagal nerve stimulator and she has had brain surgery yet she still has many, many seizures a day.
The one good thing is that she smiles through it all. She is happy and easy-going. I’m very fortunate that she does not have behavior problems. I don’t want to spend this whole post listing her medical problems. I want this to be a blog that uplifts as well as a place to vent.
Maybe it will touch someone else.
