We have finally weaned Taylor off of the one seizure medicine. I haven't noticed an increase in her seizure activity but then, she has so many seizures a day, I think it would be hard to tell. Now it's just getting someone to prescribe the new drug. Taylor sees 2 neurologists and they each think the other one should follow Taylor and prescribe the new medicine. It sounds like a comedy of errors right now.
Taylor is having some pretty rough seizure days right now. The seizures come like contractions…anywhere from 10 to 30 minutes apart. There are hundreds of them a day. She will just start shaking or staring off into space. Her absence seizures usually involve her eyes looking off to one side and her rolling her hands up in her shirt. She actually has a seizure we call "the Elvis". She shakes on one side of her body and one side of her mouth sort of goes up in a sneer…sort of like Elvis Presley. There are just some things that are better dealt with using humor.
Taylor loves her mp3 player. Right now, she is fixated on listening to it all the time…especially when she is throwing her tub toys over the shower curtain and into the tub. There is just something about the sound of the plastic hitting the tub that makes her laugh. Taylor also loves her photo albums. We have family pictures in there and she will look at them so much that we have to buy new albums for the pictures about every 6 months.
She still loves Spongebob Squarepants, but she has found the Nickelodeon show "Drake & Josh" now. We will hear her in her room laughing hysterically. I think it's because she has always found slapstick kinds of things funny. Taylor also loves car magazines. Mustang 5.0 is her favorite but she will look at the free AutoTraders till they fall apart. I have no idea what it is about car magazines that she finds so fascinating. I just know that when we go to Wal-Mart, she is drawn to the magazine section.
Taylor is definitely an interesting character.