I guess it’s time to do a Taylor update. Things have been so busy here in the office that I’ve barely had time to think.
I swear, that swing has been a sanity saver for me. Of course, the days when it’s above 90 I can’t let her go out but that’s only been a few days this week.
Taylor is a weird child anyway. I know she has trouble regulating body temperature, but honestly. She’s out on the swing now, it’s 81 degrees and she has to have a blanket.
I’ve always called her my little old lady because she has to have a lap blanket on when she’s sitting in her room watching TV. It doesn’t matter how warm it is.
She just came in for a caffeine free diet coke (her drink of choice) and the box of cheese Ritz Bits to take outside. I had to quit buying the box of small packages of Ritz Bits because she learned how to open the pack by herself.
I’d go in her room and there would be 10 empty packs on her desk. Now with the box, I know when she’s getting them.
My almost 21 year old, little old lady, toddler is a funny girl and I wouldn’t trade her for the world. Even if she’s making me crazy with her increased level of big seizures.
She’s having at least 20+ big seizures a day right now. But you know what? When she’s done seizing, she smiles at me. I think she knows I need to know she’s okay. Well, as okay as she can be. How she knows, I have no clue. I just know that I need that smile when she’s done. It’s like a relief valve for me.
Taylor’s in heaven right now…diet coke, Ritz Bits, the swing, and her mp3 player. She’s singing so loud, I can hear her through the door. One of these days, I’ll have to tape her singing and share it. It’s the funniest thing…in a good way of course.
Oh yeah…what is with all the Chinese comments? Am I the only one getting a ton of them. I keep deleting because I have no clue what they say. Hell, there was one on a serious post about Taylor’s health that said “happy days are here again”. Seriously people?