Friday, August 26, 2011

One of These Feet is Not Like the Other…

Parade & Taylor's foot 015

So, this is the “infamous” foot that started us down the road to diagnosing the CML.  We’ve been through 16 days of IV antibiotics, bone scans, ultrasounds, dozens of x-rays, & several different doctor specialties telling us they didn’t know what it was.

Everyone agreed that this had nothing to do with the CML.  So we were just treating her pain when she had some.  This morning, she woke up in a lot of pain.  I tried the Ibuprofen first…nothing.  I called the doctor and then gave her stronger pain meds and she became more comfortable but everyone felt she needed to be seen.

However, Taylor’s doctor isn’t in on Fridays.  Also the only appointment they had was with the NP.  Now I love this office.  All the nurses love Taylor so I know they have her best interest at heart.  The nurse on the phone said, “Dawn, I don’t want to offend you, but it really wouldn’t be fair to have the NP see Taylor because she is just too complex and she’ll scare the crap out of the NP”.

Okay, I’m so not offended by that.  I totally get it and I just had to laugh.  To me, that sentence was funny.  Of course, that could just be twisted sense of humor.

So off we go to the Urgent Care because they know Taylor just as well.  (I used to have this secret fear of being labeled a drug-seeker because we ended up in the Urgent Care so much.) The doctor actually laughed at me when I told him that. 

Anyway…I’ll stop rambling.  I’ve written all of that to just say this.  Her last x-ray in May showed no bone abnormality.  Today the doctor said that the leukemia can weaken bone so he wanted an x-ray.  Lo and behold, she has a slight hairline fracture of the ankle.

Seriously? The treatment is an ankle splint that she does not want to leave on. We don’t want to put her in a cast because then she would lose her sacred bath time.  That girl loves her baths. 

I’m not upset right now but I’m sure at some point it’s going to hit me and I’m going to be upset that she has to deal with all of this.  I will end this entry with a happy Taylor picture.


Taylor at her sister’s house (before she moved).  She  is singing this song from Barney.

Thursday, August 18, 2011

Happy Birthday Sweet Girl!

Taylor infusion 011

Taylor is 22 years old today!  It’s hard to believe that there was a time when we were told she would never see toddlerhood let alone her twenties.  Of course, she is a 22 year old “toddler” so I guess it all evens out. *laughs*

I see each birthday now as a gift.  I feel so blessed to see her smiling face each & every morning.  Well, the mornings when she decides to stay up until 3am while making 5,000 trips to the bathroom are ones when I’d prefer to see that smile a little later than 7am.

So, what do you get a girl who has everything she wants?  You give her the things she considers to be the best stuff on the planet.

1 car magazine – $6.00

1 caffeine free diet coke – $1.69

2 packages of Gummi Worms – $3.00

3 Mylar Spongebob balloons – $10.00

1 huge grin & a drool enhanced hug & kiss =