Friday, March 12, 2010

By the Way Doctor, I Forgot to Mention…

This past summer, Taylor loved just watching this

truck go 'round & 'round.

You know, I could tell you more than you would ever want to know about seizures, Trisomy 9p, g-tubes, and a myriad of medications. What I don't know a lot about is congenital heart defects. I didn't know that 1 in every 125 babies born in the USA has a congenital heart defect.


Because Taylor's heart defect was never a big issue as she was growing up, I never thought of her as a "heart baby". Apparently she is…or was. Now she's a "heart girl". There always seemed to be something else trying to take Taylor away from us that didn't involve her heart. Seizures have always been the big, bad evil thing going on in her life…they still are.


However, now that Taylor is in the first stages of heart failure, I have to start thinking of her heart first when she gets sick. A couple of weeks ago, when she was sick on the weekend and we had to take her to Urgent Care, I actually forgot to mention to the doctor that she has a heart problem. After listing her main diagnosis and the seizure disorder and all the seizure meds, I just forgot failed to mention that Taylor has a heart defect. It sounds bad, I know.


It's just that Taylor's seizures have been the main focus for 18+ years. Her seizures have been what put her in the ICU on a ventilator more times than I can remember. Now, it seems, I have a "sort of new" issue that I have to remember to tell the doctors. That way they won't freak out quite so much when they see her blood pressure and I have to go, "oh yeah, by the way…".


6 comments:

kathleen said...

It's not a bad thing that you forgot to tell the doctors about Taylor's heart issues; very easy to understand how that could happen as the diag. hasn't been in your lives as long as all of the other things.

I will continue to keep Taylor, you; the rest of your family in prayer.

hugs,

book said...

閒暇為所有財富中最美好的財富........................................

Becca said...

It's very, very easy to understand how you can forget that. Samantha was a heart baby, but after her repair all's well. But I do forget to mention it when she sees any new doctors who ask about hospitalizations or health issues. "Oh yeah, she spent a week in the hospital having open heart surgery..." And it'll be easy to forget the little card we have that states that she needs antibiotics before any kind of surgery, including dental. I hope Taylor's heart issue stays minimal for a long, long time and that you can continue to have those "oh yeah..." moments.

念強 said...

台灣本土性愛性愛a成人性愛站明星性愛正妹性愛圖卡通 h 網卡通 h 影卡通上床做愛影片卡通女影片卡通片成人卡通成人片免費看卡通成人免費卡通成人網站卡通色動畫卡通色情無碼卡通色情短片古裝成人片線上看日本無碼影片觀賞手淫過度日本AV免費?影日本av影片線上看日本a片商日本a免下載日本a免費下載日本a免費片日本a短片日本a試看日本a影片線上免費日本a線上看日本女傭片淫蕩學生妹ut美女聊天室情色貼圖色情小說

洪淑芷 said...

Since it is the early worm that gets eaten by the bird, sleep late.............................................

Anemone Pie said...

I miss you, Dawn! I'm just stopping by again to see if anything is new with sweet Taylor and to send my best to you all. :-)