Tuesday, July 27, 2010

My Funny Girl

taytay 004

I guess it’s time to do a Taylor update.  Things have been so busy here in the office that I’ve barely had time to think.

I swear, that swing has been a sanity saver for me.  Of course, the days when it’s above 90 I can’t let her go out but that’s only been a few days this week. 

Taylor is a weird child anyway.  I know she has trouble regulating body temperature, but honestly.  She’s out on the swing now, it’s 81 degrees and she has to have a blanket.

I’ve always called her my little old lady because she has to have a lap blanket on when she’s sitting in her room watching TV.  It doesn’t matter how warm it is.

She just came in for a caffeine free diet coke (her drink of choice) and the box of cheese Ritz Bits to take outside.  I had to quit buying the box of small packages of Ritz Bits because she learned how to open the pack by herself.

I’d go in her room and there would be 10 empty packs on her desk.  Now with the box, I know when she’s getting them.

My almost 21 year old, little old lady, toddler is a funny girl and I wouldn’t trade her for the world.  Even if she’s making me crazy with her increased level of big seizures. 

She’s having at least 20+ big seizures a day right now.  But you know what?  When she’s done seizing, she smiles at me.  I think she knows I need to know she’s okay.  Well, as okay as she can be.  How she knows, I have no clue.  I just know that I need that smile when she’s done.  It’s like a relief valve for me.

Taylor’s in heaven right now…diet coke, Ritz Bits, the swing, and her mp3 player.  She’s singing so loud, I can hear her through the door.  One of these days, I’ll have to tape her singing and share it.  It’s the funniest thing…in a good way of course.

Oh yeah…what is with all the Chinese comments?  Am I the only one getting a ton of them.  I keep deleting because I have no clue what they say.  Hell, there was one on a serious post about Taylor’s health that said “happy days are here again”.  Seriously people?


HappilyFlawed said...

What is with the power of caffine free diet coke? Mae has gotten into just wanting to drink the shit out of it! At the 4th of july party she had a HUGE meltdown because " THEY DRANK ALL THE DIET COKE!!!!" she was traumatized lol....

tumbleweedgirl said...

i don't know if you know how encouraging reading about taylor and your love for her is to me and Rock. knowing that someone out there has a specially beautiful and wonderful little girl means a lot. it gives me hope that someone will love lia like that besides us too

and i'm so sorry about the seizures. her smiling afterwards is such a sweet angel moment.

Erin Lutz said...

I get the Chinese spam comments too. ::sigh:: Wish i had enough time to spam the internet!

blogzilly said...

Yeah the Asian stuff are links to Asian porn sites. I get one in every post I do. It's SPAM. You can try to combat it but the only sure-fire way is to fully moderate your comments, which is a total drag.

ANewKindOfPerfect said...

How sweet is she! Smiling after seizures, content with her snacks and a swing .. I just love reading about her. :)

I have gotten the Chinese spam a few times. I think it's probably porn!

dluvscoke said...

Wow! I have a twenty-nine year old son with disabilities. We are going through some thigs with seizures right now, but nothing to this extent. Thanks for sharing.I love your blog! We have many things in common. I would love it if you would look at mine and follow it.