Saturday, January 22, 2011

So Much to Say…

Taylor ChuckECheese

I could say that I haven’t written since November because life has been super busy and that wouldn’t be a lie.  However, if I want to be perfectly honest, I haven’t written because when it comes to Taylor, I just haven’t a lot of good news.

Christmas was hectic because we decided to do this to our house this year.  It was great fun and next year will be even bigger.  Business has been non-stop since August which is the reason we could afford to decorate our house that way.

Taylor had to have another VNS surgery a couple of weeks ago.  At her pre-op appointment, we found out that Taylor only had 1 working vocal chord.  Okay, since we could still hear her sweet voice, it was okay.  The surgeon was worried because of the 2 incisions she had to have, 1 was in her neck and they had to thread new wires in-between her jugular vein and her carotid artery.  Apparently very tricky stuff that required 2 surgeons.

Taylor seemed to come through the surgery better then they thought.  We had planned to spend the night, but they let her come home.  However, her voice is gone.  What you get when she talks is a hoarse whisper.  No more cute Taylor voice.  Her surgeon seems very concerned.

It’s not like Taylor actually talked “real” words but she had a voice.  Now she doesn’t.  I kept trying to tell myself it’s okay because she came through the surgery when they were scared she wouldn’t.  But I think I’m in denial.

I don’t want to only hear this hoarse whisper from now on.  I want her voice back.  We asked if her voice would get better, but it seems the odds are not in our favor.  Furthermore, there could be a breathing issue down the road.

I would probably still not have written here tonight but The Bossman told me I needed to and as usual, he was right.  I can’t keep my head in the sand forever.  I need to just let it go and move on.  At least, right now, she’s home and happy.  That is what’s important…right?


serenaserene said...

I'm sorry that Taylor has lost her voice. Sue and Eric

Becca said...

I'm so glad the Bossman made you post tonight. I'm always looking for updates from you guys! Soooo very sorry Taylor has lost her voice! I do hope it doesn't lead to other coplications, though.
Hugs to all 3 of you!!!

ANewKindOfPerfect said...

I am so sorry that Taylor has lost her voice. I know what you mean about being happy she came through it, but still upset. My Emily doesn't talk words either, but if she lost her sounds I would be sad. :( I hope the doctors are wrong, and she manages to recover some of her voice. We are waiting on authorization for a VNS. Can I ask why she needed surgery again for it, was it a battery issue?

As for not blogging while things are going to crap, check out my blog. I just posted the SAME thing. I tend to bury my head in the sand and ignore my blog when things are rough ... which is the worst time to do that. My blog friends are so supportive and loving. I am glad that the Bossman made you update!

Dotty said...

im happy to see an update, but sorry to read the chaos and saddness thats been with you. im sorry she lost her voice. thats such a bittersweet moment, thankful she made it thru, and grieving over yet a loss still.